palliative care Archives - Jennifer Mathews

As the conscious dying movement continues to grow, so do questions about “dying well.” Does the notion of dying well imply that death is yet another thing to accomplish or strive to do perfectly?

Photo credit: © Stephen Jenkinson “Die Wise” video trailer

Often dying well implies how someone actually dies – peacefully, painfully, aware, medicated, with regrets, ease or struggle.

But Stephen Jenkinson (aka Griefwalker), a well-known Canadian palliative care counselor, takes it a step – perhaps a giant leap – further with his new book Die Wise: A Manifesto for Sanity and Soul.

Upping the ante on an already touchy subject, his states outright that the dying have a moral obligation to die well. “Dying well is a right and a responsibility of everyone,” he writes. “It is a moral, political, and spiritual obligation each person owes their ancestors and their heirs.”

Don’t the dying have enough to deal with already?

But I admit, I’m fascinated with this idea that we humans have an obligation to die well, and more so, to die wise.

Just watching the short video trailer of the book brought many memories and questions to the surface. Both my life-partner Kate and my mom had a similar cancer, and died within a similar number of months after their diagnoses – Kate in twelve weeks, my mom in sixteen.

Yet how they brought their life’s wisdom forward was markedly different. Did either of them die well? Die wise?

I tend to be a chatty person. And I’ve been known to ramble on now and again (and again and again). When my life-parter Kate had cancer and I was her primary caregiver, I became extra aware of these tendencies. I didn’t want to deplete her energy by talking too much or being too animated.

Photo credit: istockphoto.com/g-stockstudio

So I started talking much less when Kate and I spent time alone together. I also talked in a more relaxed tone, even when I was overwhelmed or in a hurry. She never asked me to be more aware in these ways. But I knew it was supportive. And I could tell she was grateful.

At the same time, I watched Kate be as engaged as ever with friends. She was someone who made you feel like you were the only one who mattered, that she was genuinely interested in you and your life. And she was! Even as her body’s symptoms worsened with her cancer, she would inquire about others’ lives and encourage them to share.

But after her visits, she would often say it had been a bit too much for her. She wanted the deep connection, but her energy would also feel drained. Kate preferred, of course, to interact in the same ways she did when her body was totally healthy. I imagine it helped her feel “normal” and not focused on her physical decline.

Ironically, Kate was the one encouraging friends to talk. Yet she didn’t enjoy feeling wiped out later. What are some ways to shift this predicament?